World Rare Disease Day February 29 2012

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Click Here to read stories of hope and inspiration from the rare disease community brought to you by The Global Genes Project.

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Mission Statement

To create a better tomorrow for ourselves and our children through education and public awareness!

What is Moebius Syndrome?Moebius Syndromeis an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. Most people with Moebius syndrome are born withfacial paralysis, which means they cannot close their eyes or form facial expressions. Limb and chest wall abnormalities sometimes occur with the syndrome. Most people with Moebius syndrome have normal intelligence, and others should take care not to confuse their lack of facial expression with dullness or unfriendliness. It is named for Paul Jullius Mobius, a neurologist who first described the syndrome in 1888.**********A little more infromation about Moebius Syndrome!

When you purchase an Official Moebius Syndrome Awareness Day Shirt A Free Shirt will be given to someone in need. Click on Photo to learn more!!


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