Each year from November 1st through January 24 we honor a different person with Moebius Syndrome as our Holdiay Hero. This year we are going to be doing our Holiday Heroes campaign a bit differently than we have done in the past. We will be honoring our Holiday Heroes and their best friends. It takes a special person to be a best friend tosomeone with a disability. We want to show them how much their friendship means to us by making them one of our Holiday Heroes too. If you want to be Holiday Hero or nominate someone and their best friend to be one just send us their photos and information to firstname.lastname@example.org
Our 7th Annual Moebius Syndrome Awareness Season is here. We are reimaging our Moebius Syndrome Global Ambassador program and opening it up to anyone and everyone who wants to spread Moebius syndrome awareness and wants to be a part of something very special..
Our Ambassadors can talk and share ideas on a private Facebook group page. All of our Ambassadors are their own bosses. They decide how and when they want to contribute. No contribution is too small. We provide them with support, ideas, and themes. We will also provide online business cards to share or print. If you would like to become a Moebius Syndrome Gloabal Ambassador email us your photo, name and location to email@example.com.
To create a better tomorrow for ourselves and our children through education and public awareness!
What is Moebius Syndrome?
Moebius Syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. Most people with Moebius syndrome are born with facial paralysis, which means they cannot close their eyes or form facial expressions. Limb and chest wall abnormalities sometimes occur with the syndroem. Most people with Moebius syndrome have normal intelligence, and others should take care not to confuse their lack of facial expression with dullness or unfriendliness.
To learn more about Moebius Syndrome